See the Rare Diseases Day 2024 Run in Germany
Rare Diseases Day Run in Oberthal, Germany had nearly 50 runners hit the finish line
Scientific Director’s Corner: What is a Natural History Study?
We Were in the House … The White House
Hear Charlene Son Rigby’s comments on a panel discussing “Policy Challenges and Opportunities in the Rare Disease Community”
Scientific Director's Corner: Genes are the Blueprints for Making Proteins
Celebrating 2023 & Looking Forward
STXBP1 Community Shines at AES Meeting: A Recap
Two Parents Determination: Sagi and Ella’s Journey to Advance STXBP1 Research
STXBP1 Foundation Recognized as a 2023 Top-Rated Nonprofit by GreatNonprofits
Personal Stories for Epilepsy Awareness Month
The Voice of The STXBP1 Community: A Landmark FDA Meeting and A Rare Achievement
Insights from Families Living with STXBP1-Related Conditions
First STXBP1 Family Meeting in Germany!
New to STXBP1 Research: The Nonsense Mouse Model
Compelling Research Involving STXBP1 to Help Patients Get a Diagnosis More Quickly
Exciting News: The STXBP1 Foundation is Growing!
See How the STXBP1 Foundation Board Has Expanded
STXBP1 STARR Webcast on Thursday, 8/17
Join live this Thursday or catch the recording afterwards
Three Take Aways from STXBP1 Summit+ 2023
STARR, ESCO, and building the STXBP1 momentum: Perspectives from 2023 STXBP1 Summit+
Call for Board Members
Call for Board Members
Highlights from the 1st European STXBP1 Summit and Researcher Roundtable
Get the Recap in our Science Center