A New Resource from our friends at FOXG1 Syndrome
A Feel Good Resource to Teach Inclusion
The role of genetic counselors in the mystery, hope, and heartbreak of neurogenetics
Here is what you need to know in 2023 from Beyond the Ion Channel STXBP1
Caregiver Connect Video Series
Watch this new video series developed for caregivers of any rare epilepsy.
Help Complete a New Study Available For Parents & Caregivers by April 15th
Our Quest for an ICD-10 Code for STXBP1-Related Disorders
The STXBP1 Brand Gets a Fresh Update
Read the design details, download the Style Guide, and use our new logos right away
Accelerate STXBP1 Disorders Research By Completing Your Surveys in the Xcelerate RARE Challenge
2022 Wrap Up and Look Forward
John Oldenhof recaps the Epilepsy Foundation research roundtable
New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1
A Fun First Nordics STXBP1 Family Meeting
Highlights from the Summit+ Researcher Roundtable 2022
$85K Raised at FCL Builders Golf Tournament!
Camden Different
Capsida Natural History Study for STXBP1
Report on FDA Listening Session on STXBP1
Update on the ORCA Communication Measure
The Distinct Roles of Glutamatergic and GABAergic Neurons in STXBP1 Phenotypes
