
A New Resource from our friends at FOXG1 Syndrome
A Feel Good Resource to Teach Inclusion

The role of genetic counselors in the mystery, hope, and heartbreak of neurogenetics

Here is what you need to know in 2023 from Beyond the Ion Channel STXBP1

Caregiver Connect Video Series
Watch this new video series developed for caregivers of any rare epilepsy.

Help Complete a New Study Available For Parents & Caregivers by April 15th

Our Quest for an ICD-10 Code for STXBP1-Related Disorders

The STXBP1 Brand Gets a Fresh Update
Read the design details, download the Style Guide, and use our new logos right away

Accelerate STXBP1 Disorders Research By Completing Your Surveys in the Xcelerate RARE Challenge
2022 Wrap Up and Look Forward

John Oldenhof recaps the Epilepsy Foundation research roundtable

New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1

A Fun First Nordics STXBP1 Family Meeting

Highlights from the Summit+ Researcher Roundtable 2022

$85K Raised at FCL Builders Golf Tournament!

Camden Different

Capsida Natural History Study for STXBP1

Report on FDA Listening Session on STXBP1

Update on the ORCA Communication Measure

The Distinct Roles of Glutamatergic and GABAergic Neurons in STXBP1 Phenotypes
