Charlene Rigby 12/22/24 Charlene Rigby 12/22/24

STXBP1 Community Activation: Reflections on 2024

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Charlene Rigby 12/29/23 Charlene Rigby 12/29/23

Celebrating 2023 & Looking Forward

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Charlene Rigby 8/14/23 Charlene Rigby 8/14/23

Three Take Aways from STXBP1 Summit+ 2023

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Charlene Rigby 3/15/23 Charlene Rigby 3/15/23

Our Quest for an ICD-10 Code for STXBP1-Related Disorders

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Charlene Rigby 12/10/22 Charlene Rigby 12/10/22

2022 Wrap Up and Look Forward

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Charlene Rigby 10/1/22 Charlene Rigby 10/1/22

New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1

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Charlene Rigby 7/19/22 Charlene Rigby 7/19/22

Capsida Natural History Study for STXBP1

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Charlene Rigby 7/9/22 Charlene Rigby 7/9/22

Report on FDA Listening Session on STXBP1

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Charlene Rigby 6/15/22 Charlene Rigby 6/15/22

Update on the ORCA Communication Measure

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Charlene Rigby 5/3/22 Charlene Rigby 5/3/22

The Distinct Roles of Glutamatergic and GABAergic Neurons in STXBP1 Phenotypes

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Charlene Rigby 3/5/22 Charlene Rigby 3/5/22

Therapy Approaches for STXBP1 Disorder

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Charlene Rigby 3/5/22 Charlene Rigby 3/5/22

What Are Pharmacological Chaperones?

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Charlene Rigby 1/14/22 Charlene Rigby 1/14/22

Chemical Chaperone Therapies for STXBP1

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Charlene Rigby 12/22/21 Charlene Rigby 12/22/21

Third Annual Synapse Roundtable: Collaboration at Its Finest

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Charlene Rigby 12/20/21 Charlene Rigby 12/20/21

Welcome James Goss, New Scientific Director

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Charlene Rigby 6/26/21 Charlene Rigby 6/26/21

How your Child’s Medical History is a Tool Towards a Cure

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Charlene Rigby 5/22/21 Charlene Rigby 5/22/21

Love is Being an STXBP1 Grandparent

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Charlene Rigby 5/14/21 Charlene Rigby 5/14/21

Welcome STXBP1 Italia

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Charlene Rigby 4/25/21 Charlene Rigby 4/25/21

STXBP1 Foundation is Part of COMBINEDBrain To Speed Clinical Trial Readiness

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Charlene Rigby 4/13/21 Charlene Rigby 4/13/21

Ciitizen Natural History Study Starts Recruitment April 16

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