From Heartbreak to Action

Trailblazing Together

Our community has experienced significant loss recently. While we continue to hold space for grief, we are choosing to honor that grief by Trailblazing Together, moving forward carefully, compassionately, and as one community. 

To help us move forward, we are thrilled to share that a generous donor has activated a $100,000 matching gift to our Move to Cure campaign on behalf of twin STXers Mackenzie & Megan Mitchell. With this match, every dollar you give is doubled!  The original campaign goal was $100,000. Thanks to this match, we now have the opportunity to unlock $200,000 to support families and accelerate the work ahead.

Thank you for being here for each other and for turning care into action.

Here is how you can help today

  • Already part of a Move to Cure team? Share the news of the match with your supporters — let them know their gift will now go twice as far.

  • Not on a team? Support any existing team or make a direct donation to the campaign — every dollar counts.

  • Just learning about STXBP1? Welcome! STXBP1 is a rare neurodevelopmental disorder, and the parent-led STXBP1 Foundation is working to find treatments and support families. By giving or sharing this campaign, you’re helping move science and care forward.

  • Everyone can share the match. Copy the STXBP1 Move to Cure 2025 Campaign, post it on social, or send a quick message to a friend. One share can bring in one more gift — and that’s impact.

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Strides in STXBP1 Research in Aug and Sep

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A Message From The Family…